Life as a Spectator Sport

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Tuesday, May 10, 2005

Somehow I had not expected Clarence to be mentally incapacitated. I knew his physical condition would continue to deteriorate, but I had envisioned him as slowly becoming less physically able, while still retaining his mental faculties, or as much as was left after his strokes. But except for rare occasions now, he is unable to verbalize what he wants. This morning we had an hour-long miserably frustrating exchange in which he tried to tell me he wanted the air conditioning turned on. He kept bawling "Lei-sure! Lei-sure!" over and over, and pointing toward the door. I asked him the usual questions: did he want something to eat? To drink? To have the television moved? Where was the thing he wanted? In the bedroom? The kitchen? The bathroom? Was he too hot? Too cold? Sometimes he has known the word he wanted but just couldn't say it, and was able to spell it for me, but this time he couldn't even do that. We went around and around, both of us getting more aggravated and frustrated, until Nick asked him whether he wanted the air conditioning on. Yes! nodding his head furiously. I had asked him that earlier and he'd said no, but apparently that was indeed what he wanted, and his repeated pointing at the floor was an attempt to draw my attention to the floor vent.

As a result of this extended attempt at communication, Nick was half an hour late for his art lesson, because Clarence did manage to say one coherent sentence: "I'll die if I don't have it before you leave." I was tempted to insist that he had everything he needed, but I could't take the chance that he knew something essential that I hadn't thought of.

We came home to find the compressor running and the house just as hot as it had been when we left. The heat pump part of it has been working fine, so I don't know what the problem is and it will take at least two days to get a repairman here.

Worst of all, Clarence will not be able to ride along with me on my inspection trips. After what really was an easy day Friday—driving up to his doctor's office and then another 40 miles to a store I inspected in Roanoke, he was so prostrate with exhaustion that if Nick had not been here, I would not have been able to get him out of the car and into the house. Since then he has fallen again, and had to be picked up off the floor and put to bed again by the volunteer rescue squad. He is effectively bed-ridden unless there are at least two adult-sized people in the house to assist him.

Shelley's boy friend Mike will be here by the end of the month, living with us while he looks for a place of his own and a job. So I'll have at least a short respite. What I'm going to do between now and then I'm not sure, as I am about to be late with a large number of inspections. I've hired a local woman to stay with Clarence and Nick while I'm out of town on Thursday, Saturday and Sunday, but I can't afford her for very long. Eight hours worth of her services could easily be more than my gross income some days, depending on how far I have to drive and how many stores I have to inspect in a given day.

I don't want to think about nursing homes, but I may have no choice.
posted by Liz @ 3:30 PM     |


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